To achieve the main objective described, the following specific objectives shall be accomplished:
Research Coordination● Creation of a sustainable network of researchers involved in intellectual disabilities, cancer prevention, epidemiology, health sciences, social sciences, education and other adjacent fields, engaged in knowledge exchange.
● Establish the ‘state of the art’ in terms of national and cross-national co-produced knowledge base, and explore how this could be of benefit in the lives of people with intellectual disabilities.
Capacity Building● The appointment of leads in the network who will be responsible for engaging with
researchers and other key stakeholders within and outside the network to develop discussion, explore current thinking and progress thinking in the area both nationally and internationally
● Creation of a database of experts to assist in the planning and conduct of primary research in cancer prevention in the intellectual disabilities populations
Action CA21123 - CUPID
The main aim and objective of the Action challenge is the lack of systematic knowledge across the EU about the degree that cancer prevention strategies respond to the unique cognitive and healthcare needs of people with intellectual disabilities. CUPID knowledge generation will be responsive to the and healthcare needs of people with intellectual disabilities. This will be achieved through the specific objectives detailed in the Technical Annex.
Cooperation within the COST Action is organised around four closely interconnected WG’s working in parallel. The rationale for establishing the WG’s is twofold. First there is a need to exchange knowledge and expertise between the different groups that constitute an interdisciplinary approach to understanding integrated cancer prevention efforts for and with people with intellectual disabilities on many levels: co-production of a research agenda and knowledge base with people with intellectual disabilities and relevant stakeholder groups and at the level of policy making and resource provision. Second the timeline of the Working Groups is created to drive the Action towards the specified outcomes and enable coordination of European efforts in determining which way a multidisciplinary approach will be the most effective while meeting the rights of people with intellectual disabilities for equal access to healthcare in accordance with Section 25 of the UNCRPD.