WG3: Universal EU Cancer prevention strategy methodology
WG3 will focus upon combining the outcomes from WG’s 1 and 2 into a comprehensive plan for a multidisciplinary approach to develop a research agenda for a universal EU cancer prevention guideline that is responsive to the unique needs of people with intellectual disabilities. Development of this strategy will take into account the following key areas: 1) improving the overall health of people with intellectual disabilities taking into account the recommendations of the European Code of Cancer; and 2) responsiveness to ensure all people with intellectual disabilities should have the same right to access cancer screening programmes and that their unique needs are taken into account in the ecological approach to care provision including economic and literacy requirements
- To develop a research agenda to develop EU wide cancer prevention guidelines for people with intellectual disabilities.
- Organisation of a Training School about health system goals for targeted cancer prevention and screening programmes for people with intellectual disabilities
- Liaise with the WG4 to ensure reports are published from workgroup meetings and information is disseminated thought the Action’s website and social media accounts; together with the other WG’s, overseen by the MC, participate in organising the Action conference.
Task 1Exchange knowledge and experiences based upon WG’s 1 and 2 in order to design a research agenda to design guidelines for a minimum standard of equitable access to cancer prevention initiatives and screening programmes implementation beyond the Action.
Task 2Generate a research agenda to develop guidelines for the different health providers of the necessary knowledge, skills and competencies needed to meet the standard-of-care requirements along with appropriate evaluation designs to investigate the outcome for each speciality.